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Related Links
The
following links are provided so you can learn more about trisomy 13 and
other chromosomal disorders. They are for information only and not an endorsement of any group.
Living with Trisomy 13-Photos and Videos
http://www.livingwithtrisomy13.org/index.htm
The Alliance of Genetic Support Groups
www.geneticalliance.org
UMDNJ Consumer Health Web- Genetics Links
http://www.healthynj.org/health-wellness/genetics/genetics-links.html#Genetic%20Disorders
Rare Genetic Diseases in Children
http://mcrcr2.med.nyu.edu/murphp01/homenew.htm
Agenesis of the Corpus Collusum - ACCKIDS
http://acckids.tripod.com
Alyssa Rose McHugh Foundation - Aiding the growth and development of premature infants
http://www.alyssafoundation.org
Preemie Partners
http://www.preemie.homestead.com/
Special Needs Advocate for Parents
http://www.snapinfo.org/
The National Organization for Rare Disorders (NORD) (information on disorders)
http://www.rarediseases.org
Mothers United for Moral Support (MUMS) (family matching)
http://www.netnet.net/mums/
Chromosome Deletion Outreach (CDO) (family matching of rare disorders)
http://members.aol.com/cdousa/cdo.htm
Exceptional Parent (magazine for parents of child/ young adults with special needs, annual resource guide of organizations, products, and services)
http://eparent.com
Also check out:
- Jason's Dream's for Kids - http://jasonsdreamsforkids.com- A non-profit organization located in Red Bank, NJ dedicated to granting wishes for children with life-threatening illnesses.
- Pearls of Grace Fine Art Prints - http://www.pearlsofgracefineart.com Pearls of Grace Fine Art Prints is a Company producing Giclee Prints of Catholic art by Melissa Dayton. The paintings reflect moments of grace, peace, joy and God's mercy, with light and
color reminiscent of old masters.
- Alyssa's Angels - http://www.alyssasangels.com/index.php - Alyssa's Angels is a non-profit 501(c)(3) organization that assists children with disabilities and their families. We wish to help lessen the financial burden by providing funding for therapeutic recreation and medical equipment. We also
support non-profit organization helping children with disabilities.
All donations are tax deductible.
The Michael Gerard Puharic Memorial Fund, Inc. is a 501c3 non-profit corporation.
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