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Have a question about chromosome related disorders
or other illnesses affecting newborns?
Ask our panel
Michael's Feat recruited parents of children with chromosome disorders and other serious illness, a genetic counselor, and experienced nurses to serve on our panel*.
"Awareness is so important for parents facing a diagnosis of a chromosomal disorder such as Trisomy 13 or 18.
"An awareness campaign such as this can assist medical and nursing professionals in pointing parents in the right direction to find the information and support they need. Through education and awareness, parents can learn about expectations and options regarding certain disorders and help them develop appropriate coping and support systems",
Karen Long, BSN, RNC and NICU at Monmouth Medical Center.
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*Disclaimer
All material provided in this website is provided solely
for educational and informational purposes, and is not meant to
supplement or replace medical advice of professionals familiar with your
specific condition. The statements of the professionals on this website
are only their opinions based upon the information you have provided to
them. You should consult with your own physician or other medical
professional regarding the applicability of any of the opinions or
recommendations expressed herein with respect to your own symptoms or
medical conditions.
Resource Center Main Page
All donations are tax deductible.
The Michael Gerard Puharic Memorial Fund, Inc. is a 501c3 non-profit corporation.
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