Michael's Feat Family Resource Center Panel Bios
Parent of a child with special needs
Hello, I'm Dana Cassidy, age 41, married to Kevin with five children. My last child Morgan was born with the following:
-A Genesis of the corpus collusion (missing the midline section of her brain)
-Hydrocephelus - shunt placed 12/15/00
-Arnold Chiari Malformation repaired once May 2001
-Growth hormones deficient -takes daily shot of replacement hormone
-Fed through g-tube
-Hypoglycemic - low blood sugar
-Certical visual impairment - no depth perception
-Cognitive skills are very jumbled
Although Morgan walks independently, she is very off balance, favors her right side and cannot walk mote than 3 minutes without her legs falling out from under her.
I'd like to let other parents know, that YOU can get through this. With a strong support system. it can be done!
Click here to contact me.
Parent of a child with Trisomy 13
We are the parents to Josiah, a full Trisomy 13 child born January 14, 1998. He is now stable after a few "fix-it" surgeries. He has many of the classic anomalies and is attending school M-F.
Click here to contact me.
Parent of a child with Trisomy 18
We were the parents of a daughter who had Trisomy 18. We treasured every moment we had with her.
Click here to contact me.
Parent of a child with Trisomy 21
Bio to come
A Certified Genetic Counselor
My name is Ivy, and I have been practicing as a genetic counselor in New Jersey, for over 13 years. My expertise is in prenatal and pediatric genetics, and I love being able to help to educate families.
On a personal note, I am a wife, and mother of two girls, and am also a mom who lost a child due to extreme prematurity. One of my daughters is adopted, too, so I am supportive of much diversity in family life. I hope to be able to bring knowledge and compassion to families who contact this web site.
Click here to contact me.
A Certified Registered Nurse
Bio to Come
Parent of premature triplets
I am the parent of 2 surviving triplets born at 22 1/2 weeks. They spent 3 months in the NICU and the doctors were uncertain of their future since they were born before viability. They are now healthy, active little boys.
Their triplet sister, Alyssa, died when she was 4 days old. To honor her memory, we started a foundation called www.alyssafoundation.org
We provide developmental items and information for premature infants in the NICU. We know how scary it is to have preemies and the experience that comes with that. Please contact me if you have questions, concerns, or just need to talk to a mom who has been there.
Click here to contact me.
*Disclaimer
All material provided in this website is provided solely
for educational and informational purposes, and is not meant to
supplement or replace medical advice of professionals familiar with your
specific condition. The statements of the professionals on this website
are only their opinions based upon the information you have provided to
them. You should consult with your own physician or other medical
professional regarding the applicability of any of the opinions or
recommendations expressed herein with respect to your own symptoms or
medical conditions.
